From the category archives:

Advocacy

WASHINGTON, D.C., July 1, 2010 — Representatives from the Juvenile Diabetes Research Foundation, a leader in type 1 diabetes research worldwide, testified this week in two congressional hearings focused on advances in diabetes research and the importance of continued diabetes research funding through the Special Diabetes Program. On Wednesday, June 30, 2010 at 9:30am, the Senate Indian Affairs Committee, chaired by Sen. Byron Dorgan (D-ND), held a hearing on the impact and importance of diabetes research for individuals and communities across the United States. JDRF also testified on Thursday, July 1, 2010 at 10:00am on the state of diabetes research before the House Energy and Commerce Committee, in a hearing chaired by Health Subcommittee Chairman Representative Frank Pallone (D-NJ). These hearings underscore the importance for Congress to renew the Special Diabetes Program, which currently funds $150 million a year in type 1 diabetes research, 35% of the federal investment in type 1 diabetes research.

Robert Goldstein, M.D., Ph.D., Senior Vice President of Scientific Affairs for JDRF, testified before the House Energy and Commerce Health Subcommittee, and Gary Hall Jr., a 3 time Olympic swimmer with type 1 diabetes, provided testimony on behalf of JDRF at the Senate Indian Affairs Committee hearing. Joining Dr. Goldstein and Mr. Hall was Judith Fradkin, M.D. of the National Institute of Diabetes and Digestive Kidney Diseases (NIDDK) at the National Institutes of Health, as well as representatives from the Centers for Disease Control, American Diabetes Association and the National Indian Health Board.

“Research offers the best hope for a cure for type 1 diabetes and has yielded new and improved therapies and treatments that now give people with type 1 greater quality of life and longer life expectancy,” stated Dr. Goldstein. “The Special Diabetes Program is a key contributor to the advancements we’ve seen in diabetes research and has dedicated funding for the innovative and collaborative multi-center human clinical trials that are helping to test better therapies and treatments for people with type 1. A timely renewal of the program is critical to continue these clinical trials and maximize the research opportunities that will bring us even closer to a cure for type 1 diabetes.”

The Special Diabetes Program was created in 1997 and has been renewed by Congress four times. Currently funded through fiscal year 2011, the program consists of two parts – research funding for type 1 diabetes and education, prevention, and treatment programs for Native American populations with type 2 diabetes. Bi-partisan leaders in Congress have introduced S. 3058 and H.R. 3668, legislation to renew the Special Diabetes Program through fiscal year 2016. The legislation to renew the program has achieved broad, bi-partisan support, with 60 co-sponsors in the Senate and 281 co-sponsors in the House.

“Thanks to the Special Diabetes Program, research has moved from the lab to human clinical trials that are identifying those at high risk for type 1 diabetes and testing therapies to prevent the onset of the disease and slow its progression,” said Mr. Hall. “This program is drastically changing – if not saving – the lives of countless people with diabetes. Its renewal will bring us one step farther along on our path to a cure for this devastating disease.”

Type 1 diabetes is an autoimmune disease that can occur at any age, but is most commonly diagnosed in childhood, adolescence or young adulthood; as many as 3 million Americans live with type 1 diabetes. The disease requires multiple insulin injections daily just to survive, is difficult to manage, carries the constant threat of devastating complications including blindness, kidney failure, heart disease, stroke, and amputation, and usually results in a drastic reduction in quality of life and shortening of the average life span. More than 24 million American have diabetes, which costs the U.S. economy $174 billion annually in direct and indirect medical costs, with costs associated with the disease projected to triple in the next 25 years.

Read the testimony of Gary Hall >>

Read the testimony of Robert A. Goldstein, M.D., PH.D.

{ 0 comments }

Children’s Congress 2011 – Early Application Available!

by Greg Martin06.14.2010

Share
About Children’s Congress 2011
The Children’s Congress 2011 early application will be available on Tuesday, June 22, 2010 to advocates who joined the JDRF Diabetxt Mobile Advocacy network by requesting to receive an early release of the application via text message. If you would like to receive an early application text ‘CC11’ to 37420 from your [...]

Read the full article →

Please Attend AB 1802 Advocacy Day on April 19th

by Greg Martin04.09.2010

ShareAB 1802 – the California bill that would permit voluntary non-medical school personnel to be trained to administer insulin – will be voted on April 20th by the Assembly Business & Professions Committee. We need your help to inform lawmakers that this issue is important and that AB 1802 is worthy of their support.
As part [...]

Read the full article →

Promise Campaign Provides Support for the Special Diabetes Program

by Greg Martin04.07.2010

ShareSince the launch of JDRF’s Promise to Remember Me campaign in August 2009, JDRF Advocates have completed over 300 meetings with Members of Congress.

The Promise Campaign is a coordinated effort to schedule and complete as many meetings as possible between representatives and senators and their constituents in their local districts. In addition to building relationships [...]

Read the full article →

Important Legislative News For Diabetes Families In California

by lisashenson02.11.2010

ShareDear Friends of the Diabetes Community,
We are delighted to announce the introduction of a new bill, AB 1802, into the California Legislature by Assembly Member Isadore Hall III (D-Compton) in support of children with diabetes attending California schools.  Hall’s bill would establish a procedure by which a parent or [...]

Read the full article →

From the Ferry Building in San Francisco

by Greg Martin11.15.2009

ShareHappy World Diabetes Day!
Yesterday evening 100 people gathered just outside the Ferry Building to raise awareness of issues of importance to the diabetes world and to keep diabetes firmly in the public spotlight.  At the same time in cities around globe, thousands of others gathered to commemorate WDD by lighting buildings in the color of [...]

Read the full article →

What are You Doing on World Diabetes Day 2oo9?

by Greg Martin11.11.2009

ShareStill looking for an idea on how you can get involved in World Diabetes Day on Saturday, November 14th?  Here are some suggestions.
Take the Test
Three million Americans have type 1 diabetes. Do you know the signs? wddusa.org.
Take The Big Blue Test: bigbluetest.org

PUT ON YOUR TWIBBON
Do you have a Twitter or a Facebook account? On World [...]

Read the full article →

San Francisco Ferry Building Going Blue For World Diabetes Day – Nov 14

by Patrick McKowen11.03.2009

Share
Thanks to the generous sponsorship by Johnson & Johnson and JDRF, San Francisco’s Ferry Building will go blue this World Diabetes Day!
We invite you to join together with other people with diabetes at this very special event as we celebrate together World Diabetes Day.
When:
Nov. 14, starting at 5 pm until about 7 pm-ish
What:

Come with your [...]

Read the full article →